HAPPY HALLOWEEN!

Happy Halloween to all my warriors who celebrate! I just love it for allll the candy! Make sure you all are bundled up even with costumes on. Have a great time, but you don't want to be in pain the next day. Be smart with your choices (:

" my no costume, costume lol "

Stay strong,

Morgan 

Appointment Update

Hello!

So I had my appointment two days ago on Tuesday. It went great, amazing!!! My mom went with me, and we took the train over. The office is right down the street from my the station so it's a quick and easy commute. The emergency room where I will use if needed is right around the corner. I met my nurse practitioner who i will be seeing and talking to the most, she was amazingly thorough with all of the information. She was very helpful, and seems like she knows her stuff so far. We came up with a care plan for her to send over to the hospital. It informs them that i am their patient and that i have sickle cell (so I don't get any side eyes, or thoughts that I am lying or a drug seeker hopefully), also the pain medicine they should give first. We decided on Dilaudid, Toradol, Zofran and fluids. I was so happy that I got to be involved in the care plan instead of the doctors in the hospital (who don't know me well) deciding what was best. 

I also got to meet my hematologist, only for a couple of minutes. He seemed nice, and was happy to see that I was doing so well! I will meet with him and talk with him more at my next visit. My new hospital also has a Sickle Cell support group that is patient run with the help of the nurse practitioner and program coordinator, Oh! That's a another thing. They have an actual sickle cell program, with people who CARE about us and are working to make us better. The nurse practitioner, program coordinator, and social worker solely work with SC patients! This is so amazing to me because at my pediatric hematologist its was WAY more cancer orientated, they didn't keep us in the know about any sickle cell programs/events or anything. Anyway, I wanted to let you all know that I am very optimistic about my new facility. I wont see how great they really are until I REALLY need them. 

p.s. I am going to Pennsylvania Hospital now, cant believe I forgot to mention that lol. 

Stay Strong!
Morgan

I'm BACK

Hey guys, so I went down to VSU Homecoming with my aunt I had a good time, I got to see what it's like to be at an HBCU and live that college experience. But now I am back! And I had great talks with people over all of the things I want to accomplish for Sickle Cell! I got so much information and I am feeling so motivated! I can't wait to get things moving, and you all to be there on my side the whole time. But to What wanted to talk about today! 

I had a conversation with a woman who has a teenager with sickle cell. Her daughter was just being able to get back in school, and she has been very depressed. Girls at school don't understand her life, and see her as self-centered, and rude. When she tried to spread awareness they didn't want to hear it. It saddened me to hear this because I was her just a few short years ago. I felt so alone, and like an outsider. NO ONE understood what I was going trough, and simply didnt care too. It was one of the worse times of my life. It is so important to have a support group in your life, people who don't and do know what you are going through. People who you can vent too and learn from. Its so important to feel that love from people because depression is REAL! Being sad and dressed can send you into a crisis so quickly and depression takes LIVES! The good days that is with sickle cell have need to be spent happy and productive. Any teens or people with sickle cell who need that supper please contact me through my email morgkscott@gmail.com.I'm always happy to help and support my fellow strong! Continue to spread love and awareness! YOU ARE ALL WORTHY! 

Stay Strong, 
Morgan

New Beginnings

A week from today is my first doctors appointment with my adult hematologist! I am nervous and very excited at the same time. I set up my appointment and made the transition all on my own. I feel like a true adult, lol. My mom made me do it on my own(which I hated!!!) but I need to be doing these things on my own. I am happy to finally be away from my pediatric outpatient facility. Out of all the people who work in the building, about 4 of them know my name! I have been going there since I was a baby! The others will walk past without even saying hello. It is so unprofessional, and rude. Maybe I am just to friendly, but I feel in private settings, like a doctors office, you should greet everyone or at least smile! But,  I am hoping for a new and brighter beginning!

I have heard so many horror stories about how adult sicklers get treated in the hospital that it scares me. They get sent home with only one round of IV meds, because ER's think we are drug addicts just coming in for the high. How can you look at someone, with this terrible disease, in excruciating pain and deny them treatment? Just because someone is not crying and screaming in pain doesn't mean they are not sick! After so many years of dealing with constant pain you know how to cope and to function with it, and that crying about it doesn't always help. I am still optimistic that I will have a great experience, I have god, my mom, and my KNOWLEDGE on my side. I will be working hard with my doctor to make plans and I will refuse any horrible treatment!

I will be sure to let you all know how my appointment goes next tuesday!

p.s. I created an Instagram page and a Facebook page I will be posting too also! make sure to follow! Thank you all for reading and supporting

Instagram: sicklecellstrong
Facebook: https://www.facebook.com/scddiaries

Stay Strong
Morgan

YES!

YES YES YES YES YES! We got some key help from Khloe Kardashian at the end but it was ALL OF us that did this! Over 100,000 signatures we or got out there, informed people and got those signatures! This is such a big deal! We matter, people care. I  am determined to  keep this awareness running. Brainstorming as we speak, stay tuned I have a lot I want to do!

Stay strong,

Morgan