Okay, so… all my life just like any one else with Sickle Cell I have been on some type of medication. When I was younger till i was 11, It was penicillin and Folic Acid. After that, we drop kicked the penicillin and it was just Folic Acid. As I grew older, my crisis became worse and more persistent. That is when my doctor put me on Hydroxyurea. Like any other rebellious teenager ( ha ha ) I refused to take it. I don't know what it was in my head that made me not want to take it but i simply just wouldn't. I knew that it could help me feel better but, i refused. Until it started to affect my every day life, when I couldn't go out because i was sick or missed weeks of school because of being in the hospital. I decided I wanted to LIVE a good life. So I started to take my medicine everyday as ordered. I feel better than ever! I know that Hydroxyurea doesn't work for everyone but I am blessed that it works for me. For those of you that are just starting on Hydroxyurea, please give it a try, take it on time like you are supposed to. If you are on it and like I used to be, refusing to take it, but see that it is working for you when you are… than please please please stay on it! Improve your quality of life, and your health.
Also,during/ after a crisis. You might be tempted to stop taking your pain medications when you are feeling better. DON'T! You might feel tempted to jump right into work, school and activities. DON'T! Most likely you will be throwing yourself back into a crisis. I have done this one too many times. Continue taking those meds, I usually give myself a day to recover. Take more depending on how long your crisis or hospital stay was.
Love yourself, and take care of yourself and most importantly take your meds!!!!
Stay Strong,
Morgan