I just want to raise awareness for a disease that ruins quality of life for so many people in the world. Worrying about taking your meds everyday, when you will get sick again, health insurance, prescriptions, getting a job that will understand, friends who will include you, a partner who will love you no matter what, how will my kids/ future kids be affected?! Being thrown into a sickle cell crisis at any time means you could be sick on vacation, at your wedding, An important meeting, your kids graduation. It's a life of worrying, and planning to a T! Why do so many other diseases get such grand exposure and when I tell people I have Sickle Cell they ask " what is that? "
I get very discouraged by my lack of support. Yes I am asking for financial donations to help start my T-shirt line for awareness BUT I also just want blog views, to just READ a blog post. Or not even my blog GOOGLE sickle cell!! Educate yourself. People say "whatever you need just let me know" when you let them know it's crickets. But it won't stop my fight, it won't kill my voice. I will keep posting and talking about sickle cell because more needs to be know on about the most common genetic blood disorder.
STAY STRONG KEEP FIGHTING KEEP TALKING
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