Appointment Update

Hello!

So I had my appointment two days ago on Tuesday. It went great, amazing!!! My mom went with me, and we took the train over. The office is right down the street from my the station so it's a quick and easy commute. The emergency room where I will use if needed is right around the corner. I met my nurse practitioner who i will be seeing and talking to the most, she was amazingly thorough with all of the information. She was very helpful, and seems like she knows her stuff so far. We came up with a care plan for her to send over to the hospital. It informs them that i am their patient and that i have sickle cell (so I don't get any side eyes, or thoughts that I am lying or a drug seeker hopefully), also the pain medicine they should give first. We decided on Dilaudid, Toradol, Zofran and fluids. I was so happy that I got to be involved in the care plan instead of the doctors in the hospital (who don't know me well) deciding what was best. 

I also got to meet my hematologist, only for a couple of minutes. He seemed nice, and was happy to see that I was doing so well! I will meet with him and talk with him more at my next visit. My new hospital also has a Sickle Cell support group that is patient run with the help of the nurse practitioner and program coordinator, Oh! That's a another thing. They have an actual sickle cell program, with people who CARE about us and are working to make us better. The nurse practitioner, program coordinator, and social worker solely work with SC patients! This is so amazing to me because at my pediatric hematologist its was WAY more cancer orientated, they didn't keep us in the know about any sickle cell programs/events or anything. Anyway, I wanted to let you all know that I am very optimistic about my new facility. I wont see how great they really are until I REALLY need them. 

p.s. I am going to Pennsylvania Hospital now, cant believe I forgot to mention that lol. 

Stay Strong!
Morgan