Sorry for the long period of no posts. This weekend I had my first major crisis all year... It was terrible. I forgot how it was to be in pain. It started Friday night I got a shock through my body and new that i was about to go into a crisis. It started in my shoulders and my chest but stayed ib my back and chest. I cried because I was finally feeling normal and now I was in pain. The pain wasn't that bad Friday night but the pain got worse Saturday I had to go to the ER because I didn't have any pain meds except Motrin at home. I called my parents and was on the way to CHOP. I was in so much pain and nothing could help it, I could barely walk I just wanted to sleep but I couldn't. Luckily the ER wasn't crowded, I was able to get back into a room in the ER in under 30 minutes. There was some confusion wether I should stay at CHOP or go to penn hospital because I am in the middle of transitioning, but I needed up staying at chop because I hadn't been seen by my new doctor yet. The overall experience in the hospital wasn't bad. It will *hopefully* be my last time in the Children's Hospital because I am transition to adult.
Everyone was really nice and loved everything I was doing for sickle cell and my goals to the future, they said I was a sweetheart, and the coolest patient which made me feel good. But, My pain wasn't being controlled and I feel hey didn't do EVERYTHING they could have to get me better. If they could have given me more fluids, or a transfusion and less morphine which makes me sick. I feel I could have made a faster recovery. They make you seem like they want your opinion but whenever I asked for something they thought something else was better. I am hoping that through transitioning to adult they will take my opinion and experience seriously when it comes to treatment. Being in the hospital really brought me down, and lately I haven't been feeling myself. I don't know why, but I just can not stay happy. I hope that soon I can get back to being me. Pain free, and happy.
I hope to get my life back from Sickle Cell soon.
Stay Strong,
Morgan
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